This week, we speak to Emily Sheppard, Director of Usher Kids Australia. Emily and her family received a diagnosis that changed their lives and the landscape for one of Australia’s rare diseases. We find out more about how UsherKids Australia began.
Transcript: Click here to download
UsherKids Australia www.usherkidsaustralia.com
Rare Disease Day 28th February 2020 at the Genetic Support Network of Victoria https://www.gsnv.org.au/event/rare-disease-day/